Moving Forward

3 Things:

1. We had some good visits in Topeka last week.  We have a much better idea of who we should be seeing now, so we're regrouping and heading back soon.  More on this as it unfolds.  Also, we've created ANOTHER blog that is less personal to help in our legislative efforts. It's a work in progress, but if you are interested go here.

2. Otis received his red card in the mail last week!  We talked with Otis' Colorado Doctor about how to move forward towards treatment.  Charlotte's Web will not be available to him until October...so we're working with her to try to get him started sooner on a similar strain, now that he has his red card...however, like everything else in this process there are hurdles...so we're working on it.  When there is more to report, we'll let you know.

3. We are headed to St. Louis next week for a third opinion.  St. Louis Children's Neurology Dept. is ranked #2 in the country right now, just behind Boston...but STL is ahead of Boston in epilepsy management...which is what we're going for.  We'll be seeing Dr. Thio and although we don't expect anything game changing, it will be good to get a fresh prospective.

Thanks to everybody!  Especially our parents, for your support and love, thank you so much!

Ok, on to the good stuff...

 Playing in the water.

 FOOOOOOOD!

Love and Smiles